West Sussex charity celebrates Rare Diseases Day and more than £100 million into vital medical research

The Horsham-based children's charity Action Medical Research is marking Rare Diseases Day (29 February) this year by celebrating investing more than £100 million into vital medical research over the past 60 years.

Thousands of families across the UK are coping with the challenge of caring for a child with a rare and devastating disease for which there is no cure. We know that medical research can save and change children’s lives. Yet surprisingly, medical research into conditions that devastate children’s lives is poorly funded.

Action Medical Research brings hope to these forgotten families by supporting research for genetic factors that cause distressing and disabling rare conditions.

Read more on the Action Medical Research website.