The Horsham-based children's charity Action Medical Research is marking Rare Diseases Day (29 February) this year by celebrating investing more than £100 million into vital medical research over the past 60 years.Read more on the Action Medical Research website.
Thousands of families across the UK are coping with the challenge of caring for a child with a rare and devastating disease for which there is no cure. We know that medical research can save and change children’s lives. Yet surprisingly, medical research into conditions that devastate children’s lives is poorly funded.
Action Medical Research brings hope to these forgotten families by supporting research for genetic factors that cause distressing and disabling rare conditions.
28 February 2012
West Sussex charity celebrates Rare Diseases Day and more than £100 million into vital medical research
23 February 2012
Testing begins: pioneering study explores links between being born early and difficulties with maths
Around 160 schoolchildren from London and Leicestershire are taking
part in a pioneering study, funded by Action Medical Research, to try to
understand the links between being born very prematurely and struggling
with mathematics.
Over 10,000 babies are born very prematurely (more than eight weeks early), each year in the UK. Sadly, many go on to develop learning disabilities. Difficulties with maths are especially common in these children. A maths disability can have far-reaching consequences throughout life and children can have special educational needs at school.
Credit: ITV Central Tonight Regional News, 6pm 3/2/12. By Amy Welch, ITV Broadcast Journalist.
ITV do not endorse any charity or organisation featured in their news programmes.
Find out more about this research.
Over 10,000 babies are born very prematurely (more than eight weeks early), each year in the UK. Sadly, many go on to develop learning disabilities. Difficulties with maths are especially common in these children. A maths disability can have far-reaching consequences throughout life and children can have special educational needs at school.
ITV Central - Billy Harrison
Credit: ITV Central Tonight Regional News, 6pm 3/2/12. By Amy Welch, ITV Broadcast Journalist.
ITV do not endorse any charity or organisation featured in their news programmes.
Find out more about this research.
Action Medical Research celebrates contribution to the first polio vaccines
Children’s charity Action Medical Research was originally founded in
1952, by Duncan Guthrie, in his quest to find a cure for polio, a
condition that blighted the lives of many thousands of children
including his own daughter Janet (see Janet’s story below).
As reported in the media this week (20 Feb 2012), India has become the latest nation to rid itself of polio with no new cases being reported since January 2011.
Early research funded by the charity led to the development and rapid adoption of the first oral polio vaccine which eradicated new cases of the disease in the UK.
This initial success spurred the charity on to improve the quality of life for thousands of polio survivors left disabled or paralysed by the disease, as well as striving to prevent and treat other disabling conditions.
Since then the charity has developed an extraordinary track record in supporting some of the most significant medical breakthroughs in recent history – breakthroughs that have helped save thousands of children’s lives and changed many more.
As reported in the media this week (20 Feb 2012), India has become the latest nation to rid itself of polio with no new cases being reported since January 2011.
Early research funded by the charity led to the development and rapid adoption of the first oral polio vaccine which eradicated new cases of the disease in the UK.
This initial success spurred the charity on to improve the quality of life for thousands of polio survivors left disabled or paralysed by the disease, as well as striving to prevent and treat other disabling conditions.
Since then the charity has developed an extraordinary track record in supporting some of the most significant medical breakthroughs in recent history – breakthroughs that have helped save thousands of children’s lives and changed many more.
22 February 2012
Help raise money for Action Medical Research when you shop
When buying your cycling gear in 2012 from one of the retailers below, if you click the link below first Action Medical Research will get a small percentage of the total price.
Chain Reaction Cycles
Evans Cycles
Wiggle Online Cycle Shop
Try out your new gear on one of our many cycling events.
Chain Reaction Cycles
Evans Cycles
Wiggle Online Cycle Shop
Try out your new gear on one of our many cycling events.
Action Medical Research welcomes our new Cycling Ambassador Joanna Rowsell
Want to take part in your own cycling challenge?
Check out the Action Medical Research cycling calendar.
Action Medical Research London to Paris bike ride filling up
The Action Medical Research London to Paris bike ride is filling up fast with route 2 already full.
Discount available for teams of four or more
If you are registering as part of a team of four or more for the Action Medical Research London to Paris bike ride you can register for just £40 each. That is a £59 saving per team member.
To take advantage of this offer, when on the checkout page enter the discount code L2PTEAM.
Register now on the London to Paris bike ride page.
New for the 2012 London to Paris bike ride
A women-only route is a new additional to the Action Medical Research London to Paris bike ride which takes place on 18-22 July 2012.
The new route will take 150 women from the O2 arena to Paris through Dover crossing the English Channel arriving in Calais before riding through Abbeville and Beauvais then arriving in Paris where you can watch the finale of the Tour de France or take advantage of the Paris shops.
Find out more on the women-only London to Paris bike ride page.
Discount available for teams of four or more
If you are registering as part of a team of four or more for the Action Medical Research London to Paris bike ride you can register for just £40 each. That is a £59 saving per team member.
To take advantage of this offer, when on the checkout page enter the discount code L2PTEAM.
Register now on the London to Paris bike ride page.
A women-only route is a new additional to the Action Medical Research London to Paris bike ride which takes place on 18-22 July 2012.
The new route will take 150 women from the O2 arena to Paris through Dover crossing the English Channel arriving in Calais before riding through Abbeville and Beauvais then arriving in Paris where you can watch the finale of the Tour de France or take advantage of the Paris shops.
Find out more on the women-only London to Paris bike ride page.
Follow us on Twitter and Facebook
You can support Action Medical Research by joining and promoting the
following social network tools and websites. By subscribing, you will be
kept up to date with all of our events and campaigning activity. Tell
your friends, family and colleagues and help spread the word of Action
Medical Research.
Facebook
Join Action Medical Research on Facebook
Twitter
You can also follow Action Medical Research on Twitter through the events team account @amr_events and the general charity news account including @actionmedres.
Join Action Medical Research on Facebook
You can also follow Action Medical Research on Twitter through the events team account @amr_events and the general charity news account including @actionmedres.
Join an Action Medical Research midnight walk with the PLOD
Teams of tenacious walkers are being sought to take part in overnight endurance events taking place in some of the UK's greatest walking regions. The PLOD series of events raises funds for children’s charity Action Medical Research with walks taking place this summer in a choice of seven stunning UK locations – on either the South Downs Way, Cotswold Way, Chiltern Way or Yorkshire’s Chalkland Way, or following sections of the Rutland Round, in England; the Trossachs hills in Scotland or in Northern Ireland's beautiful Mourne Mountains.
David Graham, PLODs organiser at Action Medical Research, says: "Whether you are a seasoned trail walker or just up for the experience of a big challenge for 2012 this is the event for you. Our PLODs are very popular, with many teams returning year after year to beat their previous best time. They are tough events but great fun for all involved and very rewarding."
15 February 2012
13 February 2012
Youth Brass Band Entertainment Festival of Great Britain
The 2012 Youth Brass Band Entertainment Festival of Great Britain took place on 12 February at The Winter Gardens in Blackpool. The event was adjudicated by Garry Cutt (Music Adjudicator) and Paul Norley (Entertainment Adjudicator).
The awards for the different categories are listed below.
The awards for the different categories are listed below.
Music awards
| 1st | Action Medical Research Ruby Cup | Elland Silver Youth Band |
| 2nd | Rita Gaukroger Shield | Youth Brass 2000 |
| 3rd | Action Medical Research Pennine Cup | Enderby Youth Band |
| 4th | Tredegar Cup | Rochdale Borough Youth Band |
| 5th | Totman Cup | Sellers international Youth Band |
| 6th | Action Medical Research Shield | Poynton Youth Brass Band |
Entertainment awards
| 1st | Joseph Tolan Shield | Elland Silver Youth Band |
| 2nd | Taylor Cup | Rochdale Borough Youth Band |
| 3rd | Roy Castle Cup | Houghton Area Youth Band |
| 4th | Action Medical Research Trophy | Wardle High School Junior Band |
| 5th | McQueens Cup | Youth Brass 2000 |
| 6th | Lancastrian Shield | Enderby Youth Band |
Other awards
| Sylvia Graucob Rose Bowl | outstanding soloist | Youth Brass 2000 – Thomas Fountain, cornet |
| Golden Anniversary Cup | most entertaining item | Enderby Youth Band for ‘Sentinel’ |
| William Anderson Trophy | best march | Elland Silver Youth Band for Liberty Bell |
| Club Europe Prize | best tenor horn | Enderby Youth Band |
| Paddy Briggs Trophy | best soprano | Nick Harrington, Poynton Youth Brass Band |
| Tony Russell Cup | best brass section | Elland Silver Youth Band |
| Chris Giblin Trophy | best stage deportment | Poynton Youth Brass Band |
| Peter Chrimes Cup | band displaying the most potential | Wardle High School Junior Band |
| Championship Trophy | best overall band | Elland Silver Youth Band |
| Finderman Award | conductor of the champion band | Samantha Harrison |
Band performances available on DVD
The 2012 band performances will be made available on DVD. Bookings can be made by filling in the DVD order form.10 February 2012
Registration is now open for RIDE24, the UK’s only 24-hour cycling endurance track event
Registration is now open for RIDE24, the UK’s only 24-hour cycling endurance track event, to be held at Goodwood Motor Racing Circuit in Sussex on 23 and 24 June.Read more on the Sussex Business Times website
Organised by Sussex-based children’s charity Action Medical Research and operated under British Cycling technical regulations, the event is open to relay teams of four and six as well as solo riders.
To find out more about the RIDE24 event or register visit the RIDE24 website.
Discounts for teams of four on our London to Paris bike ride
Discounts of £59 per person are available for our London to Paris bike ride which takes place on 18 - 22 July 2012.
To take advantage of the discount, get three of your friends to come along and join our London to Paris bike ride and when registering enter the code L2PTEAM for your discount.
A message from Mark Cavendish
There are four routes to choose from in 2012:
Come to our London to Paris information day to find out more about the event and meet other riders taking part.
To take advantage of the discount, get three of your friends to come along and join our London to Paris bike ride and when registering enter the code L2PTEAM for your discount.
A message from Mark Cavendish
There are four routes to choose from in 2012:
- Route 1
A women-only route new for 2012.
Route: O2 Arena - Dover - Calais - Abbeville - Beauvais - Paris - Route 2
Route: O2 Arena - Dover - Calais - Arras - Compiegne - Paris - Route 3
Route: Surbiton - Portsmouth - Caen - Alencon - Evreux - Paris - Route 4
Our final route is a special 3-day London to Paris bike ride alternative for those who want to increase the challenge.
Route: Surbiton - Dover - Calais - Amiens - Paris
Come to our London to Paris information day to find out more about the event and meet other riders taking part.
Edging closer to the start of the 2012 RIDE100 series
As the cold weather hits the UK, we are busy preparing for the start of the 2012 RIDE100 series.
The first bike ride of the 2012 RIDE100 series is in Bath on the 1 April.
Bath 100 - 1 April
Starting from Bath Racecourse the undulating terrain will see you tackle testing climbs as you pass the famous landmarks of Prior Park, Orchardleigh and Caen Hill Locks.
Free parking is available at Bath Racecourse.
Find out more about the Bath 100.
Can't make the Bath 100 or too far to travel to? We have many more 100-mile/100km rides across the country to chose from.
Find your local 100-mile bike ride.
The first bike ride of the 2012 RIDE100 series is in Bath on the 1 April.
Bath 100 - 1 April
Starting from Bath Racecourse the undulating terrain will see you tackle testing climbs as you pass the famous landmarks of Prior Park, Orchardleigh and Caen Hill Locks.
Free parking is available at Bath Racecourse.
Find out more about the Bath 100.
Can't make the Bath 100 or too far to travel to? We have many more 100-mile/100km rides across the country to chose from.
Find your local 100-mile bike ride.
Adidas Silverstone Half Marathon - 11 March 2012
The Adidas Silverstone Half Marathon is one of the greatest half marathons in the UK and perfect warm up to the London and Brighton Marathons.
Take part in this fantastic race around the historic Silverstone race track in Northamptonshire.
Registration for the Adidas Silverstone Half Marathon is just £49.
Raise £100 or more for Action and we'll send you a Paddington Mascot! If you manage to raise £1,000 you will receive a FREE Polar running watch with heart rate monitor.
Find out more about the Adidas Silverstone Half Marathon.
3 February 2012
The Times "Cities fit for cycling" campaign launches
The Times has started a campaign to make UK cities safer for cyclists.
Tweet to your followers to support the campaign.
Cyclists safety when on the road is vital and is something Action Medical Research are fully behind as we work our way towards the 2012 cycling season with our RIDE100 series and the biggest London to Paris bike ride.
Tweet to your followers to support the campaign.Cyclists safety when on the road is vital and is something Action Medical Research are fully behind as we work our way towards the 2012 cycling season with our RIDE100 series and the biggest London to Paris bike ride.
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