18 October 2012

H.R.H. The Duke of Edinburgh, hosts charity’s 60th anniversary reception at Buckingham Palace

A group of esteemed researchers will share their vital work with His Royal Highness the Duke of Edinburgh - Patron of children’s charity Action Medical Research, at a special reception at Buckingham Palace on the evening of Monday 15 October.

The Diamond Anniversary Reception will be held in a one of the State Rooms at the Palace and will celebrate the children’s charity’s 60th anniversary.

Representatives from the charity will include Mr Richard Price – Chairman, Field Marshal The Lord Guthrie GCB LVO OBE DL – President and Trustees.

Researchers from six projects currently being funded by the charity will present their work to The Duke of Edinburgh and more than 100 assembled guests.

Their work will include: studies into the cause of brain cancer in children; resuscitation of newborn babies; developing a vaccine for meningitis B; epilepsy in children; bowel problems in newborn babies; and multiple sclerosis among children.

Richard Price, Chairman of Action Medical Research, says: “We are honoured that Action Medical Research’s patron His Royal Highness the Duke of Edinburgh is hosting this reception to celebrate our 60th anniversary.

“It’s a wonderful way to mark this proud milestone and showcase to guests some of the fantastic research that we are currently funding across the UK to save and change the lives of babies and children.”

This year Action Medical Research celebrates 60 years of vital research. The charity is currently supporting work around Down syndrome, meningitis, epilepsy, cerebral palsy, premature birth and some very rare conditions that severely affect children.

For more information on the Diamond Anniversary Reception please visit www.action.org.uk/palace2012

17 October 2012

Help us save the lives of more vulnerable babies like Scarlett

"The first few weeks with a new baby are meant to be the happiest time of your lives, but we went through hell.
I had to avoid surprising Scarlett or touching her too much. I couldn’t even breastfeed my daughter, her nose and mouth were so sensitive, touching them would trigger convulsions."
Abbie, Scarlett's mother.

Scarlett from Grimsby (pictured here) is one of those gorgeous babies you just want to hug. But a hug in the first few weeks of life could have proved fatal to her because she was born with a rare brain disorder called hyperekplexia or startle disease.

If Scarlett is startled by noises or touch she reacts in an exaggerated way becoming rigid or unable to move. Sometimes she’ll stop breathing – so it could be fatal.

Very little is known about startle disease, so it took doctors two weeks to diagnose Scarlett. During that time, her life was in terrible danger. A delay in diagnosis can lead to a baby not receiving the best care – potentially putting their lives at risk.

Right now, Action Medical Research is supporting researchers in London and Swansea who are looking for more changes in genes that cause startle disease.

An early diagnosis for children with this rare disease can increase a child’s chances of survival. Will you help us find the answers?

11 October 2012

Christmas Card sales going well

 
Sales on Christmas cards on the action.org.uk website are going well with our holiday nuts being snatched quickly.

Buy your Christmas cards from Action Medical Research.

Ordering your Christmas cards from Action Medical Research helps fund vital research to help sick babies, children with disabilities and those suffering from a rare disease.

Grab your chance to Dine with Davina McCall


Action Medical Research is proud to present Dine with Davina – sponsored by NEXT on Friday 9 November 2012 at the Grand Harbour Hotel.

To help celebrate our 60th anniversary we would like to invite ladies to enjoy a special luncheon hosted by Davina McCall.

Davina says: ''I'm very excited to be hosting the sixth Dine with Davina and can't believe we have already raised over £165,000 to help support Action Medical Research - a charity very close to my heart. Ladies who are thinking about coming along, I promise you will love this event - there is lots of laughter, chat and always brilliant entertainment.
I do hope you will be able to join us!''

Haverhill Action Medical Research Halloween Dinner and Dance - 27 October 2012



You are invited to the Haverhill Action Medical Research Halloween Dinner and Dance at Wickhambrook Memorial Social Centre.

Date/time: Saturday 27 October 2012, 7:00pm for 7.30pm prompt
  • Dancing to local band - The Process
  • Black Tie or Fancy Dress
  • Carriages at midnight
  • Raffle and Bar
Tickets £50 from Mrs Joan Ford on 01440 730577 or Mrs G Argent - johnargent@hotmail.com

8 October 2012

Online registration for the Bucks 100 2013 goes live

Online registration for the Bucks 100 on the 15 September 2013 is now open.

Riders can register as either a fundraiser or a sportive rider.

Fundraisers

Register for £28 and commit to raising a minimum of £30 in sponsorship for Action Medical Research.

Sportive

Register for £50. You are not required to raise sponsorship as a donation is included.

If you can't make the Bucks 100 on the 15 September 2013, there are plenty of other 100-mile bike rides in our events calendar.

Top London researchers awarded grants to help sick babies and children

Leading researchers in London have been awarded more than £400,000 in grants by children’s charity Action Medical Research, to carry out studies which aim to help reduce the suffering of sick babies and children.

The charity is celebrating its anniversary in 2012 by marking 60 years of funding which has led to some key scientific breakthroughs. In total the new grants have been awarded to research institutes at universities and hospitals across the country, with more than £1.2 million investment across nine different projects.

London based researchers, in conjunction with others in Southampton, Sheffield and Cambridge, have been awarded £426,735 for work on Down syndrome, cystic fibrosis and sickle cell disease.

None of the charity’s work would be possible without the generosity of people who make donations, raise funds and take part in events, as well as our trust and corporate partners.

Dr Caroline Johnston, Research Evaluation Manager, said: “We know that medical research can save and change children’s lives. Our gold standard scientific review process ensures that we only fund the best doctors and researchers in children’s hospitals, specialist units and universities across the UK and we are delighted to announce these grant awards.”

The Apprentice’s Margaret Mountford supports Action Medical Research

Margaret Mountford of The Apprentice fame will take a break from her busy schedule to host Belfast Ladies’ Lunch for Action Medical Research at the Ramada Palace Belfast on Friday 19 April 2013.

The Northern Irish born former corporate lawyer says: "I am delighted to be associated with Action Medical Research – a charity which 60 years on, continues to find and fund vital medical research. I look forward to meeting the Belfast ladies at the event and together making a difference for sick babies and children."

Over 300 ladies are promised a peek into the good-humoured side of the lady whose headmistress-like demeanour and icy remarks have made many participants of the show break out in a sweat.

The ladies will be welcomed by TV presenter Pamela Ballantine, treated to a two course meal and have a chance to win the star ballot.

Belfast Ladies’ Lunch in April 2012 raised over £8,000 for the charity.


This year Action Medical Research celebrates 60 years of vital research. The charity is currently supporting work around Down syndrome, meningitis, epilepsy, cerebral palsy, premature birth and some very rare conditions that severely affect children.

4 October 2012

Diamond Diva Lunch - Friday 12 October 2012


It's our birthday – join us in celebrating 60 years of vital research for sick babies and children. What a great year to be celebrating our diamond anniversary and we hope you and your girlfriends will be able to join us for a very special Diamond day at the stunning Tithe Barn, Haselbury Mill set in the heart of Somerset and Dorset.

We can assure you of a warm welcome at our drinks reception followed by fabulous food and not to missed entertainment. There will be the opportunity to have a pamper on our beauty therapy stalls and ideas for a totally gorgeous new look with our fashion show by White Feather of Sherbourne.

Tickets are limited so we suggest you book early
Tickets: £28 per person

Book online at action.org.uk/diamond

3 October 2012

Investing £1.2 million in research for sick babies and children

Action Medical Research – the leading UK children's charity – has today announced grants worth more than £1.2 million for top researchers across the country.

The charity is celebrating its anniversary in 2012 by marking 60 years of funding which has led to some key scientific breakthroughs. The new grants have been awarded to research institutes at universities and hospitals investigating conditions affecting babies and children.

In this latest round of funding, the charity has given out a total of £1,218,929 across nine different projects including research for children with Down syndrome, cerebral palsy, asthma and cystic fibrosis:

Down syndrome and obstructive sleep apnoea: better screening might stop unnecessary suffering, two years, £199,752 granted to researchers at University Hospital Southampton, Evelina Children’s Hospital, London and Sheffield Children’s Hospital.
 
Developing treatments for the rare genetic disorder Smith-Lemil-Opitz syndrome, three years, £173,809 awarded to researchers at Cardiff University. Lead Researcher: Dr Emyr Lloyd-Evans, Cardiff University

Microneedle technology for pain-free drug monitoring in new born babies, two years, £94,154 awarded to researchers at Queen’s University Belfast. Lead Researcher: Dr Ryan Donnelly, Queen’s University Belfast

Does fungal infection contribute to the severity of asthma in children? two years, £133,642 awarded to researchers at University of Leicester, Leicester Royal Infirmary and Glenfield Hospital, Leicester. Lead Researcher: Dr Erol Gaillard, University of Leicester

Management of kidney complications in children with sickle cell disease, two years, £91,290 awarded to researchers at the University of Cambridge, University of Oxford and King’s College Hospital, London. Lead Researcher: Dr John Gibson, University of Cambridge

Thyroid function screening during pregnancy: benefits for child development? two years, £107,853 awarded to researchers at Cardiff University Lead Researcher: Professor Marian Ludgate, Cardiff University

Upper limb rehabilitation for children with hemiplegic cerebral palsy, two years, £109,372 granted to researchers at the Newcastle University and The Newcastle upon Tyne NHS Hospitals Foundation Trust. Lead Researcher: Professor Janet Eyre, Newcastle University

Reassessing lung function of pre-school children with cystic fibrosis, two years, £135,693 awarded to researchers at the Institute of Child Health, University College London and Royal Brompton Hospital, London. Lead Researcher: Dr Paul Aurora, University College London

Understanding the genetic basis of childhood ataxias, three years, £173,364 awarded to researchers at The John Radcliffe Hospital, Oxford. Lead Researcher: Dr Andrea Nemeth, John Radcliffe Hospital, Oxford

None of our work would be possible without the generosity of people who make donations, raise funds and take part in events, as well as our trust and corporate partners.

Dr Caroline Johnston, Research Evaluation Manager, says: “At Action Medical Research we are determined to stop the suffering of babies and children caused by disease and disability. We know that medical research can save and change children’s lives. The charity finds and funds some of the best medical research in the world for the benefit of babies, children and young people.”

“Our gold standard scientific review process ensures that we only fund the best doctors and researchers in children’s hospitals, specialist units and universities across the UK and we are delighted to announce our latest grant awards.”

Action Medical Research funds a total of approximately £3 million worth of research grants every year, awarded in the summer and autumn, the charity also awards Research Training Fellowships annually.

2 October 2012

Order your Christmas Cards on action.org.uk

Order your Christmas cards today and help fund vital research to help sick babies, children with disabilities and those suffering from a rare disease.